A mediocre day today
Briony's breathing support has been increased again. She is now on 6.5 litres of vapotherm, rather than 6 litres and is up at 40% oxygen. They have also restarted her medicines for reflux as she is worse after each of her feeds. She seems to be growing into her lung disease rather than out of it.
Nanny and Grandad Chaffin visited today. Briony was wide awake with arms and legs everywhere for Nanny and was showing off to Grandad by moving her head around from where it had been put. At one point she turned her head round completely the other way, but had a rather abrupt ending when her muscles got tired and she face planted onto her bed!
Her hands and feet feel cold again, so my money is on another transfusion in the next few days....
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